Trial Visit Delayed

Justin’s appointment at Cedars-Sinai on June 3 had to be rescheduled. Justin has Shingles, which is a re-occurrence of the dormant chicken pox virus that apparently lives in us all until it’s potentially re-aggravated. We were afraid this would cause problems with his trip to L.A. for his final transplantation (injection) in the stem cell trial. We alerted his neurology team there, and they alerted Brainstorm, the trial sponsor and maker of NurOwn. Thankfully, they could reschedule him for two weeks out instead. We’d feared that he may not be able to participate at all, so we’re relieved. He’s on the mend now and we hope to be in L.A. the week of June 15 for a few days. It will be our last trial appointment. On one hand, we’re excited to not have to travel to L.A. monthly (at our own expense) and leave Varen. On the other hand, it sometimes feels like the end of the hope the trial has given us. After it’s over, we just have to pray and fight for the FDA to approve this and other promising trials stuck in trials before it’s too late.

Justin's ALS Prayer